Our Baby has Sixty-Five Roses is the title of a new book just launched by Kildare mums Eilís Moroney and Ruth Cahill to help explain cystic fibrosis (CF) to other children in an age-appropriate way. “Sixty-Five Roses” is how children often first say the words “cystic fibrosis” and for Eilís and Ruth, who are both parents of children with CF, the book is about helping siblings and relatives better support the person with CF in their lives, while also giving comfort to parents at a very difficult and challenging time.
The book has been written by primary school teacher Eilís, with designer Ruth undertaking the artwork. Not only is the book for new parents and families, but is also aimed at friends, class-mates, cousins, pre-schools, primary schools, and hospitals.
The book, which was part-funded by Cystic Fibrosis Ireland, tells the story of a baby girl through the eyes of her big brother and his best friend, Baxter the dog. The new-born infant has just been diagnosed with CF, and we read about the medications she has to take, the daily physiotherapy sessions, and the changes to her diet. We also get to know her friendly and caring medical team who protect her “Sixty-Five Roses”.
Latest figures from the Cystic Fibrosis Registry of Ireland show that there are almost 1,400 people living with CF in this country, with 47 cases recorded in County Kildare. In fact, Ireland has the highest incidence of CF in the world for its population size, and some of the most severe types of the disease.